Neville Clare describes how he found his true life’s work, campaigning about the disorder that afflicted him and that was still regarded as a mystery, or as taboo, by most even in his own community. He has travelled round the country and much of the world, speaking, arguing, organising, and fundraising. From the vantage point of today, it seems hard to believe some of the controversy and opposition that was stirred in the early days by OSCAR’s laudable aims. Other disputes about treatment continue all too sharply, however.
This book tells a story that goes way beyond the medical. It goes to the heart of Black history and politics. This book deals with concepts of race, of disease, of genetics and of patients' rights. It tells the often woeful history of public neglect of the disorder, then of treatments imposed which are later withdrawn from patients. It also tells of a life, from Jamaican childhood to adult; the struggles, the battles against chronic pain as well as against ignorance and prejudice.
This book is radically different from anything that has appeared on Sickle Cell before. It is an authoritative, personal, passionate and brave account of the real significance of this disorder in Britain today and why it deserves a far better deal than to be seen as a "minority" issue.
ISBN: 978-0-99555932-0-8 Publisher: Dr Neville Clare Price: £10.00 (inc. vat)
You can also obtain this book from:
- amazon.co.uk
- waterstones.com
- WH Smith
If you are unable to obtain the book please contact me directly.